Abstract
Relatively little is known about the practice and implications of using standardised research measures with people living with dementia at different degrees of severity. It is crucial that we learn more about the ways that dementia symptoms and their progression can affect both the quality (reliability and validity) of quantitative data, and the experiences of research participants.
I am investigating the quantitative data collection encounter from the perspectives of participants living with dementia and research workers administering standardised measures. I will consider the impact of dementia symptoms as they change over time, combined with the interview context and questionnaire content, on the types and quality of data collected.
Aim
Research questions:
• How do people with dementia experience structured interviews involving standardised measures?
• What context and/or content factors influence the answers given by people living with dementia to standardised measures?
• How might these change over time as dementia symptoms progress?
• What are the implications of this for research incorporating standardised measures?
Project Lead
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Research Area(s)
Other Areas: Dementia, social care
Study Design(s)
Other Designs: Observations of data collection from people with dementia participating in a large UK cohort study (https://determind.org.uk/); interviews with participants with dementia, carers and DETERMIND research workers; triangulation of qualitative themes with patterns in the quantitative data collected for DETERMIND
Data Collection Method(s)
Participant(s)
Other Participants: Research participants with dementia, their family carers and the research workers collecting data from them
Status
Expected completion date: April 1, 2025
Stage
Study Funding/Support
Other(s): University of York