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Developing the National Institute for Health and Care Research Disability Framework

Abstract

As part of the implementation of the NIHR Research Inclusion strategy 2022-2027 , the NIHR has developed a Disability Framework to guide the organisation in ensuring that disabled people are empowered to fully engage with the NIHR across all of its research funding activities (e.g., application, decision-making, reporting, administration and management). To inform the framework, and to avoid assumptions relating to barriers individuals are facing, we conducted a study to understand the experiences of disabled people when engaging with NIHR, and the challenges that may have hindered or prevented successful engagement. Engaging with a wide range of NIHR stakeholders through an anonymous online survey and focus groups, we identified good practice as well as barriers at NIHR, leading to recommendations for improvement to access and inclusion. These recommendations were incorporated into the NIHR Disability Framework which was published in March 2024.

Aim

This study aimed to identify areas requiring focus to improve disability access and inclusion within the NIHR, thus allowing the NIHR to:
• Become a more inclusive research funder.
• Promote inclusive practices across the organisation.

Intended Impact of the Study

The 2023 Disability Inclusion survey received over 400 responses. Six focus groups, facilitated by Disability Rights UK, included public members and programme teams. These activities identified both positive practices and accessibility barriers at the NIHR. Consequently, six recommendations were made to improve disability access and inclusion. An action from the framework led to reviewing current development of the NIHR grant management systems for accessibility issues, ensuring these systems meet accessibility standards.

Project Lead

Alejandra Recio-Saucedo

Project Collaborators

Sharon Wilkinson

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